Welcome!
We’re glad you found us

We’re constantly updating and adding things as we learn about new resources and opportunities for people living with neurological conditions and cognitive impairment. We hope you find these resources helpful!

If you’re here to learn about how to get involved with the TDC Co-Lab, scroll to the bottom of the page or click here

Online Information

Information, Programs, and Services

Provincial

Local

Books

  • Dementia Companion Handbook

    Dementia Companion Handbook

    Open PDF

    This guide is designed to help you learn about the changes that occur while living with dementia. You may experience changes that affect your ability to complete thoughts, find words, and remember information and directions. This guide was developed to help you track and write down any important information that you learn from your healthcare visits.

  • The Insider’s Guide to Dementia Care

    The book also provides practical and effective memory strategies, using patient stories to illustrate the real-life issues facing people living with MCI. The book includes "Questions to Ask Your Doctor," recommended readings, links to relevant Web pages, and worksheets to guide readers through healthy lifestyle change. This second edition contains 52 accessible chapters with a new chapter on sex differences to summarize the growing knowledge of its importance in health and treatment of MCI. As advances in research continue to evolve, this book will continue to be essential reading for those impacted by MCI.

  • Dancing with Dementia: My Story of Living Positively with Dementia

    Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Since then she has gone on to challenge almost every stereotype of people with dementia by campaigning for self-advocacy, writing articles and speaking at national conferences. This book is a vivid account of the author's experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. Christine Bryden makes an outspoken attempt to change prevailing attitudes and misconceptions about the disease. Arguing for greater empowerment and respect for people with dementia as individuals, she also reflects on the importance of spirituality in her life and how it has helped her better understand who she is and who she is becoming. Dancing with Dementia is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.

  • Somebody I used to know

    As Mitchell learned to embrace her new life, she began to see her condition as a gift, a chance to experience the world with fresh eyes and to find her own way to make a difference. Even now, her sunny outlook persists: She devotes her time to educating doctors, caregivers, and other people living with dementia, helping to reduce the stigma surrounding this insidious disease.

    Still living independently, Mitchell now uses Post-it notes and technology to remind her of her routines and has created a “memory room” where she displays photos—with labels—of her daughters, friends, and special places. It is a room where she feels calm and happy, especially on days when the mist descends.

  • Remember When: My Life with Alzheimer's

    Much-loved broadcaster Fiona Phillips was sixty-one when she discovered that she had early-onset Alzheimer’s disease. She had cared for her parents who had both suffered from the disease and now she was facing the same heartbreaking diagnosis – under no illusions about what it would mean for her and her family.

    With courage and determination, Fiona set out to chronicle what was happening to her in the hope that her book would help others. From the tiny first warning signs – the inability to concentrate and the ‘brain fog’ she wrote off as the menopause – to the gradual loss of her memories and her growing confusion, she reveals how the disease progresses and how she copes. She also shares her experiences with the NHS and the systems that may seem hard for patients and their families to navigate.

  • Alzheimer's from the Inside Out

    Thoughtful and self-reflective, this collection of illuminating essays offers a rare glimpse into the often incomprehensible world of individuals living with Alzheimer's disease. Diagnosed at age 58, psychologist Richard Taylor shares a provocative and courageous account of his slow transformation and deterioration, and of the growing divide between his reality and the reality of others.
    With poignant clarity, candor, and humor, Taylor addresses the complexity and emotions surrounding issues such as the loss of independence and personhood, unwanted personality shifts, the struggle to communicate, changing relationships with loved ones and friends, continuous declines in ability to perform familiar tasks, and never-ending uncertainty about the future.

  • Dementia from the Inside: A Doctor's Personal Journey to Hope

    After resigning as a GP, she resolved to explore what could be done to slow the progress of dementia. The aim of this practical book is to help people who are living with dementia and to give hope to those who are with them on the dementia journey. Jennifer believes that her dementia is an opportunity as well as a challenge. Her important insights are that the person 'inside' remains and can be reached, even when masked by the condition, and that
    spirituality rises as cognition becomes limited.

Get Involved with the TDC Co-Lab

Thanks for your interest! The two main ways to get involved are to:

  1. Participate in a research study. 

  2. Become a community research partner. 

If you’re interested in participating in a study, click here to learn about current projects. 

If you’re interested in becoming a community research partner, you can click here to learn more about what a community research partner is and how to connect with us about this opportunity.