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We hope you find these resources useful, and we encourage you to check back every so often for new ones. We’re constantly updating and adding things as we learn about new resources and opportunities for care partners of people living with neurological conditions and cognitive impairment. 

If you’re here to learn about how to get involved with the TDC Co-Lab you can scroll to the bottom of the page for more information! 

Online Information

Books

  • What to Do Between the Tears

    This book is the roadmap they created and used through his journey that ended in August of 2016. In "What to Do Between the Tears..." she shares her game plan and her journey with her father’s Alzheimer’s with you.Topics covered in this book include: • Learning More after a Diagnosis • Financial & Legal Considerations • Medical Options & Choices • Self-Care & Support Needs • Choosing In-Home Care or a Care Facility • Connecting with Your Loved One • End of Life Planning • Additional Resources

    Find on Amazon

  • Caring for a Loved One with Dementia: A Mindfulness-Based Guide for Reducing Stress and Making the Best of Your Journey Together

    In this book, you’ll learn how to approach caring with calm, centered presence; respond to your loved one with compassion; and maintain authentic communication, even in the absence of words. Most importantly, you’ll discover ways to manage the grief, anger, depression, and other emotions often associated with dementia care, so you can find strength and meaning in each moment you spend with your loved one.

  • Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey, 

    Love in the Land of Dementia offers hope to family members, friends, and care partners of people who are living with memory loss. Strong, fluid organization and tender writing distinguish this purposeful and compelling read, which is filled with practical suggestions, compassionate support, and unexpected insights.

  • Loving Someone Who Has Dementia

    Loving Someone Who Has Dementia is a much-needed guide that offers proven strategies for managing ongoing stress and grief. Dr. Pauline Boss outlines seven guidelines for staying resilient while caring for someone who has dementia and offers hope when experiencing "ambiguous loss" having a loved one both here and not here, physically present but psychologically absent. Loving Someone Who Has Dementia is written for anyone touched by the epidemic of dementia: caregivers, family members, friends, neighbors, as well as educators and professionals. Written in easy-to-understand conversational language, this vital resource is based on solid research and years of clinical practice. Dr. Boss gives you the tools you need to embrace rather than resist the ambiguity in your relationship with someone who has dementia.

  • Coping With Behavior Change in Dementia

    This handbook is intended to help families understand possible causes of common behavior changes and learn to respond more effectively to behaviors. The book includes strategies for the following: challenges with dressing, eating, bathing, toileting, mouth care; agitation, anxiety, anger and aggression; sleep and sundowning; wanting to go home; wandering, walking or pacing; repetitive behaviors; hallucinations, delusions and paranoia; physical intimacy and sexual behavior. There are also sections about communication and problem-solving, a glossary and an extensive list of other resources.

  • Ambiguous Loss

    Pauline Boss explains that, all too often, those confronted with such ambiguous loss fluctuate between hope and hopelessness. Suffered too long, these emotions can deaden feeling and make it impossible for people to move on with their lives. Yet the central message of this book is that they can move on. Drawing on her research and clinical experience, Boss suggests strategies that can cushion the pain and help families come to terms with their grief. Her work features the heartening narratives of those who cope with ambiguous loss and manage to leave their sadness behind, including those who have lost family members to divorce, immigration, adoption, chronic mental illness, and brain injury. With its message of hope, this eloquent book offers guidance and understanding to those struggling to regain their lives.

  • The Best Friends Approach to Alzheimer's Care

    Join thousands of caregivers who are adopting this groundbreaking and uplifting method for the care of people with Alzheimer’s disease. This comprehensive program builds on the essential elements of friendship: respect, empathy, support, trust, humor. They’re the building blocks of a care model that’s both effective and flexible enough to adapt to each person’s remaining strengths and abilities. It’s easy. It’s natural. It works. Learn how to ensure the highest quality of life for people with Alzheimer’s disease, not just by preventing catastrophic episodes but by making every day consistently reassuring, enjoyable, and secure. This revised edition includes new material such as an updated and expanded resource list, updated biographies of Best Friends featured in the book, and a new Preface from Virginia Bell and David Troxel. Best FriendsTM—for the best care.

  • The 36-Hour Day A Family Guide to Caring for persons with Alzheimer’s Disease, Related Dementing Illnesses, and Memory Loss in Later Life

    This classic family guide to caring for persons with Alzheimer's disease, related dementia, and memory loss in later life is now available in this user-friendly, oversized mass market edition.

  • The Insider’s Guide to Dementia Care

    The Insider's Guide to Dementia Care strives to inform consumers about the growing crisis of dementia care in assisted living. The authors provide families with the knowledge and resources they need to stand up for the rights of their loved ones: the right to be treated with dignity and the right to be cared for by properly trained professionals. More importantly, the book serves to encourage and motivate readers to take direct action toward the goal of improved care.

  • What If It’s Not Alzheimer’s?: A Caregiver’s Guide to Dementia

    The only comprehensive guide dealing with frontotemporal degeneration (FTD), the most common form of dementia for people under 60 years of age. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers.

  • Before I Lose My Own Mind: Navigating Life as a Dementia Caregiver

    When Dr. Beverly E. Thorn became a caregiver for her husband, Walt, she joined a massive army. Worldwide, unpaid dementia caregiving requires the equivalent of forty million full-time workers, and that number will only grow. But navigating dementia caregiving can feel like trying to climb a mountain in the dark—and few resources exist to support caregivers in finding their way.

  • A Loving Approach to Dementia Care

    In A Loving Approach to Dementia Care, Laura Wayman, who is known professionally as the Dementia Whisperer, offers practical, compassionate advice on overcoming caregiving obstacles and maintaining meaningful relationships with loved ones who have dementia and memory loss.

  • Dementia Care Partner Guide: Practical Tips for transforming the possibilities of care

    Teepa Snow's new Dementia Care Partner Guide features many updates from the original Dementia Caregiver Guide, including:

    A more in-depth look at the GEMS States of Brain Change, with her updated language and philosophy
    New photos to enhance learning, including a step-by-step photo guide to the Hand-under-Hand® support position
    Essential information about Positive Action Starters, Positive Personal Connectors, and Visual-Verbal-Touch Cueing
    Bonus resource card visual aids

  • Travelers to Unimaginable Lands

    Kiper explains why the caregivers are maddened by these behaviors, mirroring their patients’ irrationality, even though they’ve been told it’s the disease at work. By demystifying the neurological obstacles to caregiving, Kiper illuminates the terrible pressure dementia disorders exert on our closest relationships, offering caregivers the perspective they need to be gentler with themselves.

  • Living in the Moment

    Filled with must-have information, practical advice, and unique and comforting insights, here is everything you need to know about caring for your loved one and making his or her life the best possible-starting now, even as the disease progresses. In this book, you'll find: how to create a plan of action for today-and tomorrow-that will help all involved cope with this new normal; how to keep your vulnerable loved one safe and secure-both physically and financially; lifestyle changes, innovative new activities, and holistic interventions that can slow the progression of dementia; comprehensive information on both prescription and OTC medications that can help or hurt dementia patients; and much more.

  • Did I Remember to Tell You?: A Real-Life Guidebook for Dementia Family Caregivers

    It is based on Pam Johnson’s professional experience, spanning over forty years working with older adults in a variety of health care settings, coupled with the invaluable personal knowledge she gained while caring for her father.

  • The Dementia Caregiver's Survival Guide: An 11-Step Plan to Understand the Disease and How To Cope with Financial Challenges, Patient Aggression, and Depression Without Guilt, Overwhelm, or Burnout

    comprehensive guide -- 202-page for navigating life with dementia book features a complete guide to caregiving, covering everything from the basics of the disease to advanced caregiving strategies

  • The Caregiver's Guide to Dementia: Practical Advice for Caring for Yourself and Your Loved One

    From understanding common behavioral and mood changes to making financial decisions, this Alzheimer's book contains bulleted lists of actions you can take to improve your health and your caregiving. Inspirational and compassionate, it focuses on the caregiver's underlying love and humanity that cannot be taken away by any disease

  • Alzheimer's from the Inside Out

    Thoughtful and self-reflective, this collection of illuminating essays offers a rare glimpse into the often incomprehensible world of individuals living with Alzheimer's disease. Diagnosed at age 58, psychologist Richard Taylor shares a provocative and courageous account of his slow transformation and deterioration, and of the growing divide between his reality and the reality of others.
    With poignant clarity, candor, and humor, Taylor addresses the complexity and emotions surrounding issues such as the loss of independence and personhood, unwanted personality shifts, the struggle to communicate, changing relationships with loved ones and friends, continuous declines in ability to perform familiar tasks, and never-ending uncertainty about the future.

Information, Programs and Services

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Getting Involved with the TDC Co-Lab

Thanks for being interested in getting involved with the work that’s being done by Co-Lab members. The two main ways to get involved are to:

  1. Participate in a research study. 

  2. Become a community research partner. 

If you’re interested in participating in a study, click here to learn about current projects. 

If you’re interested in becoming a community research partner, you can click here to learn more about what a community research partner is and how to connect with us about this opportunity.